What Life With Chronic Intestinal Pseudo Obstruction Is Actually Like
This is reality. I drove my car for the first time since June a few days ago. I had to drive 5 hours to Michigan to see my doctor. Just doing that simple thing has wiped me out. I slept until almost 2PM the day after I got back to Illinois and Ive been running a slight temperature and feel overall awful. My nausea has been a lot worse the past month or two but we switched my nausea med to the IV version so hopefully that will help.
Living with the rare disease, CIPO and Intestinal failure caused by CIPO is difficult. Like really, really difficult. Normally if a patient comes into the ER with extremely dilated loops of bowel with air fluid levels and has symptoms of severe pain, nausea, and vomiting they are treated as an emergency. They are admitted and will have an NG tube placed for decompression and will be NPO and put on IV fluids and pain medicine. Sometimes surgery is required. Luckily for them there is a resolution. An end in sight.
Dilated loops of bowel with air fluid levels is the radiographic picture of a bowel obstruction. That is what a bowel obstruction looks like on imaging tests like CT scans and X-rays, MREs and barium follow-throughs. In patients with severe CIPO we live that every day of our lives but there is no fix. No surgery or solution to make it go away like for patients with actual mechanical obstructions or temporary ileus.
Are Ibs And Diverticulitis Related
People with one may also have the other, but technically are not directly related. However, the symptoms can be very similar, as discussed by Dr. Spiller in the medical journal Digestive Diseases. Diverticulitis is a type of inflammation in the colon. Sometimes doctors misdiagnose a patient with diverticulitis when they may actually have IBS, or they may also have IBS. These two conditions are sometimes difficult to differentiate. Learn more about IBS and diverticulitis.
Causes Of Ibd And Ibs
Physical signs have helped doctors learn what causes IBD.
The long-lasting inflammation in the digestive tracts of people who have IBD can cause bleeding and ulcers . In turn, this irritation causes pain. That triggers the immune system, which leads to symptoms like fever and fatigue.
The causes of IBS arenât as clear. Scientists have found links to the immune system and how muscles move food through your gut. Many people have triggers that make their symptoms worse, including certain foods, stress, infections, and hormonal changes.
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How Are Ulcerative Colitis And Crohn’s Disease Similar
- Both diseases often develop in teenagers and young adults although the disease can occur at any age
- Ulcerative colitis and Crohn’s disease affect men and women equally
- The symptoms of ulcerative colitis and Crohn’s disease are very similar
The causes of both UC and Crohn’s disease are not known and both diseases have similar types of contributing factors such as environmental, genetic and an inappropriate response by the body’s immune system
How Others Treat Me Because Of It
Its one thing to lose the pleasure of eating but to add insult to injury TPN has caused people to stop inviting me to events and I have had to miss out on things that I want to be a part of. Almost everything revolves around food and drinks. When friends get together they usually want to meet for dinner or go out for drinks. When you start dating someone its the same thing. Holidays revolve around food. Your mom and Grandma probably think that they arent loving you enough if you didnt eat 5 plates of food and then take some home with you when you visit them. I could go on and on! Its probably difficult for you to think of the last time you were invited somewhere and food wasnt involved.
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What Causes Ulcerative Colitis And Who Gets It
Docs still cant pinpoint the precise cause of the disease, but its thought the following may contribute to ulcerative colitis:
- the gut microbiome
- other environmental factors
Research also suggests that it could be the result of an interaction between infections in the colon and the bods immune response. Basically, experts think the inflammation response is prolonged in patients with ulcerative colitis, which is what causes all those achy, breaky ulcers.
Though anyone can get ulcerative colitis, most people are diagnosed in their mid-30s. These people are also more likely to get it:
- older men
- those with first-degree relatives with the disease
Ibd And Ibs Treatment
People who have IBD or IBS often try to treat it by changing what they eat. Thereâs no specific diet that works for everyone. Ask your doctor if it would help to:
- Get more fiber .
- Avoid lactose, which is in dairy products.
- Cut down on foods that make you gassy or bloated.
- Get more water.
- Avoid caffeine and legumes .
- Limit or avoid FODMAPs, a type of sugar found in some fruits, vegetables, breads, and dairy products.
Doctors usually treat IBD with drugs that target the inflammation:
- Aminosalicylates work on the lining of your intestine. They help in mild or moderate cases of IBD.
- Corticosteroids weaken your immune system. Youâll take them for a short time if your symptoms flare up.
- Immunomodulators also affect your immune system. You can use them as a long-term treatment.
- Biologic therapies keep proteins in your body from causing inflammation.
- Antibiotics fight infection caused by the disease or from surgery to treat it.
These meds generally donât work for IBS, which is one reason why itâs so important to know which condition you have.
Some people who have IBD need surgery to repair the damage to their digestive tract, but those with IBS donât.
If you have IBS, your doctor may recommend over-the-counter or prescription drugs to help with diarrhea or constipation. These include laxatives or anti-diarrheals, antispasmodics, and antidepressants.
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Which Signs And Symptoms Of Ibd Vs Ibs Are Different
Signs and symptoms unique to inflammatory bowel disease include:
- Diarrhea that may be bloody
Stress can affect both conditions. In inflammatory bowel disease, stress can cause flare-ups of Crohns disease and ulcerative colitis. Stress may cause gastrointestinal symptoms of IBS to worsen, so you may be more aware of them. Stress also can trigger symptoms because of how they can affect your daily life.
Can Ibs Cause Depression
Absolutely. Does IBS make you happy or sad? IBS can be very debilitating and therefore can cause people to be depressed. It used to be common to treat IBS with antidepressants . Unfortunately, this will rarely cure IBS and is not addressing the cause of the IBS. Many studies have documented a link between IBS and depression as well as anxiety, as described in the European Archives of Psychiatry and Clinical Neuroscience.
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Colitis Vs Irritable Bowel Syndrome
Q1. How can I tell the difference between colitis and irritable bowel syndrome? I have had various testing done and have been told that I only had some diverticulitis. But in the past few years, I have diarrhea every day. Most of the time it is uncontrollable, so I take a lot of Imodium and then I have problems with constipation. I have had barium enemas and have never had anyone tell me what I can do to stop the diarrhea. Is there any other test I should ask to have done?
The best way to differentiate between irritable bowel syndrome , ulcerative colitis, and microscopic colitis is to have a colonoscopy and extensive biopsies done so your doctor can closely look at your colon and the tissues inside it. Colonoscopy findings in people with irritable bowel syndrome are generally completely normal, and antispasmodic treatments, whether herbal or prescription, often help.
In ulcerative colitis, there are always visible ulcerations in the colon along with friability , scarring, and redness. Biopsies are taken to confirm that a diffuse inflammatory response is present. The initial treatment used for ulcerative colitis is one of the 5-aminosalicylic acid agents, which are anti-inflammatory drugs used to calm disease activity.
Since you are still uncertain about what your particular problem is, I would be sure to see a qualified gastroenterologist who can perform these tests and help you receive a correct diagnosis.
What Is Crohns Disease
Crohns disease is a type of IBD where there is inflammation of the entire gastrointestinal tract, or parts of it, from mouth to anus. In addition, the entire thickness of the bowel wall is involved in Crohns disease, which can lead to some serious complications.
What are symptoms of Crohns disease?
The symptoms of Crohns disease depend on what parts of the GI tract are involved. Common symptoms include abdominal pain, weight loss, and diarrhea.
If the lower part of the GI tract such as the colon and the small intestines are involved, you might also experience:
What are complications of Crohns disease?
Crohns disease can lead to some serious complications, such as:
Fistulas, where a hole is formed between the intestines and other parts of the body such as the skin, bladder, or vagina
Abscesses, which are pockets of infection that may need surgery or a procedure to drain them
Strictures, which are a narrowing of the bowel that can lead to blockages
Cancers of the GI tract
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Psychological Therapies In Uc
In addition to antidepressants, psychological therapies have also been shown to be beneficial in IBS. These include cognitive behavioral therapy and gut-directed hypnotherapy, and both are recommended by national guidelines for the management of IBS., However, evidence for their use as an effective treatment for UC, particularly in those with IBS-type symptoms, is lacking. A Cochrane review investigated the efficacy of psychotherapy, patient education, and relaxation techniques for IBD. Outcomes assessed included health-related quality of life, coping, emotional status, and disease activity. In total, 21 studies were included, but there was no clear benefit identified for any of the psychological interventions in adults with UC for any of the outcomes of interest.
Another systematic review of 16 studies of psychological interventions, including stress management, psychodynamically informed therapy, CBT, and hypnosis assessed their effects on anxiety and depression, quality of life, and IBD activity. CBT and psychodynamically informed therapy were beneficial for anxiety and depression, but they appeared to have no effect on disease activity, whereas hypnotherapy, used in two studies, demonstrated a beneficial effect on disease activity, but not anxiety, depression, or quality of life.
Please Stop Apologizing To Me Because I Cant Eat
Im often asked what is the most difficult thing about having intestinal failure and being on TPN. Most people assume its not being able to eat and others assume that it must be the adjustments you have to make to your daily life. I have to agree that yes, those things are very difficult and Ive been angry and sad and everywhere in between about it. Some days are better than others.
But to me the most difficult thing about being on TPN is
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About Irritable Bowel Syndrome
IBS is fairly common, with anywhere from 25-45 million Americans suffering from it. The basic cause isnt understood, but you suffer symptoms because your colon muscle contracts more readily than normal. Triggers for IBS include certain foods, stress, hormones, or other illnesses.
Symptoms of IBS may involve:
- Excess gas
- Harder or looser bowel movements than normal
- Pain or cramps in the abdomen, usually in the lower half
- Diarrhea, constipation, or alternating between the two
Rectal bleeding and black stool is not a symptom of IBS. You should seek immediate evaluation at our office if you experience possible blood in your stool.
Rest assured that IBS does not raise your risk of developing other serious issues of the digestive system, including colitis, Crohns disease, or cancer.
Why The New Site
A decade ago when I started Inflamed & Untamed I had no idea what I was starting. In fact my site wasnt even called Inflamed & Untamed until months later. This all began one day during the summer when I was out of work , just out of the hospital , and tapering off steroids again! I just wanted something to do and so I started my site on Tumblr and I also started making videos on YouTube.
I had no idea that I would receive the kind of traffic I ended up getting and it all happened so fast. I never went into it thinking I was creating anything more than a small personal blog that would maybe get a few followers and connect me to a community. This was back before Instagram existed and when there were not very many patient advocates out there at all especially on YouTube. I think that was part of my unexpected success. Here I am now a decade later and all this time Ive been a patient advocate which is an honor and privilege I hold near and dear to my heart.
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How Is Treatment Of Crohns Disease Different From Ulcerative Colitis
Although the medications may seem similar, there are differences in how Crohns disease and ulcerative colitis are treated. Many medication classes treat both conditions, so there is a lot of overlap. However, there are enough differences that getting the right diagnosis is important. For example, people with ulcerative colitis usually take aminosalicylates, while only a limited number of people with Crohns disease will benefit from these medications. When it comes to more advanced therapies like biologic agents, some can only be used for ulcerative colitis and some can only be used for Crohns disease.
Getting the correct diagnosis can be tricky. Sometimes it might look like you have ulcerative colitis at first, but later your providers will find out that its actually Crohns disease. Work closely with them to be sure you get the right treatment.
Medications Used To Treat Ulcerative Colitis
Currently, there is no cure for ulcerative colitis. The goal of medical treatment, therefore, is to modulate the inflammatory response. Several groups of drugs are used to treat ulcerative colitis. They are:
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Irritable Bowel Syndrome Myths
Irritable bowel syndrome is so common that it is likely you know at least one person with this functional disorder. In 2003, the Canadian Society of Intestinal Research advocated to mayors across Canada and succeeded in having April declared as IBS Awareness Month, yet the myths and misinformation surrounding IBS are pervasive. Read on as we dispel some of these common myths.
Are There Ibd Or Ibs Diets
There is no special recommended diet to treat IBD, but some people may respond to dietary changes such as eating smaller and more frequent meals, taking nutritional supplements, and avoiding certain foods, for example, fatty and fried foods, meats, spicy foods, and fiber-rich foods. People with Crohns disease may have difficulty tolerating dairy products because of lactose intolerance.
Patients with IBS may respond to dietary changes. Low fat, high carbohydrate, and low FODMAP foods may help ease symptoms. Fiber can be helpful in some people.
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Whats The Difference Between Inflammatory Bowel Disease And Irritable Bowel Syndrome
IBD is a disease IBS is a syndrome, or group of symptoms. The causes and treatments are different.
IBS is a type of functional gastrointestinal disease. It affects how the bowels function, causing them to contract more often than usual. IBS is also known as spastic colon or nervous stomach.
IBS doesnt inflame or damage the intestines like IBD, so imaging scans cant detect it and it doesnt increase the risk of colon cancer. People with IBS rarely need hospitalization or surgery.
Antidepressants And The Management Of Ibs Symptoms In Uc
Tricyclic antidepressants and selective serotonin reuptake inhibitors are more effective than placebos in treating IBS. A systematic review of publications reporting the efficacy of antidepressant medications in the maintenance and induction of remission of IBD was published by Mikocka-Walus et al in 2006. The review included six case reports, one nonrandomized, open-label study, and one letter that, collectively, reported beneficial effects of bupropion, paroxetine, amitriptyline, and phenelzine. However, the studies were small, and all except one was conducted in patients with Crohns disease rather than UC.
We are aware of only one study reporting the efficacy of tricyclic antidepressants in UC patients with ongoing symptoms who had no objective evidence of disease activity. It is important to point out that patients in this retrospective study were not screened formally by using validated questionnaires to confirm whether or not they met symptom-based criteria for IBS. Outcomes, which were based on self-reported symptom severity by participants who were using a Likert scale, appeared to be good, with at least a moderate improvement in symptoms in 56% of UC patients. Symptom response among those with UC was similar to that observed in a control group of IBS patients.
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