Sunday, April 14, 2024

I Think I Have Ulcerative Colitis

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How Ulcerative Colitis Is Treated

Where I’ve Been ( Do I Really Have Ulcerative Colitis? )

Treatment for ulcerative colitis aims to relieve symptoms during a flare-up and prevent symptoms from returning .

In most people, this is achieved by taking medicine, such as:

Mild to moderate flare-ups can usually be treated at home. But more severe flare-ups need to be treated in hospital.

If medicines are not effective at controlling your symptoms or your quality of life is significantly affected by your condition, surgery to remove your colon may be an option.

During surgery, your small intestine will either be diverted out of an opening in your abdomen or be used to create an internal pouch that’s connected to your anus called an ileoanal pouch.

Lifestyle And Psychological Factors

In contrast to what many people believe UC is not caused by a poor diet or indeed by any particular kind of diet. It is true, however, that many people find that certain foods and drinks can aggravate their ulcerative colitis symptoms.

In general things which might cause anybody in the general population to have gut symptoms are best avoided. This means things like spicy food, alcohol, caffeine, beans and pulses and artificial sweeteners. People with UC are also advised to cut down on foods containing sulfur.

A new study has found that relapses occur more often when high levels of red meat are consumed and foods high in sulfur but contrary to what many people believe diary products do not appear to have any effect.

It is a good idea for each individual to experiment and see what they can tolerate by keeping a food and symptom diary.

Another common myth is that ulcerative colitis is caused by stress. This is not true but ulcerative colitis symptoms can be made worse if you are having a stressful time. Of course this is a chicken and egg situation as living with the symptoms of UC is very stressful in itself.

The best advice is to keep in close contact with your doctor and follow their advice carefully but at the same time seek out support from fellow sufferers. Most countries have support organizations and forums which can provide amazing help to people sharing the same condition.

There Was A Pandemic There Was A Toilet Paper Shortage

A couple days after my test, Mayor Adler cancelled SXSW here in Austin. He was met with a lot of anger and pushback, but theres no doubt in my mind that what he did ended up saving thousands of lives.

I met with Dr. Duddempudi virtually, and she told me to stay the hell home. Ok, she didnt say it exactly like that, but I know thats what she was thinking in her head.

So I did stay the hell home. Eric also stayed the hell home. And we waited. And we waited. And we waited. And were still waiting. With the exception of a few hikes, a couple trips to the dog park, doctor appointments, and a 6-hour round-trip to Dallas where we stayed for three hours to attend my grandfathers unveiling , we have stayed locked down. Between the steroids robbing me of my immune system, and my UC flare still haunting me , I absolutely had to stay home and be as careful as possible. It was a terrifying time.

The pandemic still is scary, but at the very least Im off the steroids.

This seems like a good place to give a shout-out to the anti-maskers. Hey anti-maskers! FUCK YOU.

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What Are The Long

Ulcerative colitis can lower your quality of life. Frequent diarrhea and belly pain may force you to limit work or social activities. Having the disease can be stressful. Some people feel alone and depressed.

Over time, colitis raises your risk of colon cancer. Most doctors advise getting tested for colon cancer if you have had ulcerative colitis for 8 years.

The risk of colon cancer is highest when ulcerative colitis affects the entire colon rather than just part of it. And the longer you have had ulcerative colitis, the greater your risk of colon cancer.footnote 1

Ct Scans And Ct Enterography

Ulcerative Colitis

CT scans involve taking a series of X-rays to create detailed two- and three-dimensional images of the body. CT scans of the gastrointestinal tract can reveal a narrowing of the small or large intestine, called a stricture, or an obstruction. The test may also indicate inflammation in the small intestine, which suggests that Crohns disease may be causing your symptoms.

Occasionally, doctors may recommend an enhanced CT scan, known as a CT enterography. Prior to the scan, you drink a contrast agent. As the liquid passes through the digestive tract, the CT scanner takes pictures of the small intestine and may reveal anatomical problems. For example, if an obstruction is present, the contrast liquid is visibly blocked.

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Ulcerative Colitis Or Crohn’s

Ulcerative colitis symptoms are similar to those of another inflammatory bowel condition called Crohn’s disease. UC only affects your large intestine. But Crohn’s can happen anywhere in your digestive tract. It can cause symptoms from your mouth to your anus. Another disease called irritable bowel syndrome can cause long-term belly pain and diarrhea, but it doesn’t lead to inflammation or sores in your intestines.

When To Call The Doctor

  • Cramps or pain in your lower stomach area
  • Bloody diarrhea, often with mucus or pus
  • Diarrhea that cannot be controlled with diet changes and drugs
  • Rectal bleeding, drainage, or sores
  • Fever that lasts more than 2 or 3 days, or a fever higher than 100.4°F without an explanation
  • Nausea and vomiting that lasts more than a day
  • Skin sores or lesions that do not heal
  • Joint pain that keeps you from doing your everyday activities
  • A feeling of having little warning before you need to have a bowel movement
  • A need to wake up from sleeping to have a bowel movement
  • Failure to gain weight, a concern for a growing infant or child
  • Side effects from any drugs prescribed for your condition

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Who Diagnoses Ulcerative Colitis

If you have symptoms of ulcerative colitis, your regular healthcare provider will probably refer you to a specialist. A gastroenterologist a doctor who specializes in the digestive system should oversee the care for adults. For young patients, a pediatric gastroenterologist who specializes in children should manage the care.

What Are The Symptoms Of Ulcerative Colitis

How I Found Out I Have Ulcerative Colitis

Ulcerative colitis symptoms often get worse over time. In the beginning, you may notice:

  • Diarrhea or urgent bowel movements.
  • Abdominal cramping.
  • Liver disease.
  • Loss of fluids and nutrients.

Symptoms are similar in pediatric ulcerative colitis and may also include delayed or poor growth. Some ulcerative colitis symptoms in children can mimic other conditions, so it is important to report all symptoms to your pediatrician.

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Hi Im Holly And I Have Ulcerative Colitis

I hit a milestone today. A year ago, I was diagnosed with Ulcerative Colitis.

This is definitely a divergence from my normal blog post topics. However, I want to use my platform to raise awareness and share my perspective on this autoimmune disease. Please be warned, there are a lot of poop puns

I Have Ulcerative Colitis Now What

Raise your hand if youve had some version of that thought after receiving an initial diagnosis of UC. I was 14 years old when I was diagnosed, so I honestly dont remember my first reaction to the news. I think I was just relieved that we finally had an answer for my bloody stools, extreme weight loss and constant nausea.

But over the last 20 years, Ive met so many other people living with UC, and Ive heard so many different stories about those first days, weeks, months and even years following the news. Ive given speeches to large groups of people about life with UC. Ive spoken on webinars about my experience. Ive raised money for nonprofit organizations to support research and a cure. Most of my best friends have some sort of connection to IBD outside of me. I wont say Im an expert on the disease itself, but I will say Im well-versed in navigating the Now what? of it all. Because I promise you, if you live with UC, you will have many Now what? moments.

If youve been recently diagnosed with UC, take a deep breath. Thats the first step. Here are some next steps after that:

  • Remember that it can and will be OK. I cant speak for everyones experiences, but I can speak for mine when I say: its possible to live a full life with UC. Especially in the immediate moments following those fateful words, its important to breathe, let it sink in and remember that there are steps toward being OK that can be taken.
  • Buy really good toilet paper and baby wipes. Trust me.
  • Read Also: Is Green Tea Good For Ulcers

    What Is The Best Diet For Ulcerative Colitis

    Theres no single diet that works best for ulcerative colitis. If the disease damages the lining of the colon, your body might not absorb enough nutrients from food. Your healthcare provider may recommend supplemental nutrition or vitamins. Its best to work with your provider and nutritionist to come up with a personalized diet plan.

    Do Ulcerative Colitis Symptoms Affect All Parts Of The Gastrointestinal Tract

    Ulcerative Colitis

    No this is not the case. Ulcerative colitis affects only the colon and the rectum. It only affects the top layer of the intestinal lining.

    UC is divided into different categories depending on how widespread it is.

  • Ulcerative proctitis only affects the rectum or back passage. This form is generally milder than other types and it affects about 30% of people with ulcerative colitis. It has a better outlook than other types although in some cases the illness can start like this and then spread into other areas.
  • Proctosigmoiditis – The sigmoid colon is the part of the colon that lies horizontally from the left hip area across to the midline and attaches to the rectum. When both the rectum and the sigmoid colon are affected your illness will be put into this category. The symptoms will be worse, with more pain, blood and tenesmus .
  • Left-sided colitis – This diagnosis means that the inflammation extends all the way up the left side of the colon . The symptoms will inlclude more severe bleeding and pain with weight loss and lack of appetite.
  • Total colitis – With this type the whole colon is affected which can lead to severe bleeding and weight loss and carries the risk of complications requiring surgery.
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    Diagnosing Inflammatory Bowel Disease In Adults

    In inflammatory bowel disease, or IBD, there is persistent inflammation in the gastrointestinal tract. The condition causes symptoms such as abdominal pain, diarrhea, bloody stool, constipation, and an urgent need to have a bowel movement. The most common types of IBD are Crohns disease and ulcerative colitis.

    Gastroenterologists at NYU Langone’s Inflammatory Bowel Disease Center are experts in the gastrointestinal tract and can recommend the appropriate diagnostic tests to determine the cause of your symptoms. There is no single definitive test to confirm the presence of IBD, so the condition is diagnosed based on a combination of tests, including endoscopy, biopsy, and imaging tests.

    Enemas Are The Hot New Travel Accessory

    I flew to Salt Lake City for my second week at work. I had a carry-on suitcase entirely full of boxes of enemas. In my first 1:1 with my new boss, I had to explain to her that I was diagnosed with UC. I didnt really know what to say except that I knew very little and maybe we should cut back on my travelbut I dont really know???!?.

    The meds werent enough. Things still werent ok. I was at a work event in Dallas at the end of January, and I remember talking to Dr. Duddempudi on the phone in my hotel room. She told me that steroids had to happen. I had no idea at that point what I was getting myself into.

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    Should I Stop Taking My Medicine

    The short answer is, âNo.â If you stop taking your medicine because youâre worried about your immune system, your symptoms may flare. Some medicines take months to leave your system anyway. So stopping them now wouldnât change your risk of COVID-19 now. And you definitely donât want to have to go to a hospital now because of a flare.

    It may be a good idea to avoid steroids if you can. But you shouldnât stop taking them suddenly. As a general rule, donât change any of your medications without first talking to your doctor.

    What Can I Expect If I Have A Diagnosis Of Ulcerative Colitis

    How I Cured My Ulcerative Colitis Naturally | More Detail

    Ulcerative colitis is a lifelong condition that can have mild to severe symptoms. For most people, the symptoms come and go. Some people have just one episode and recover. A few others develop a nonstop form that rapidly advances. In up to 30% of people, the disease spreads from the rectum to the colon. When both the rectum and colon are affected, ulcerative symptoms can be worse and happen more often.

    You may be able to manage the disease with medications. But surgery to remove your colon and rectum is the only cure. About 30% of people with ulcerative colitis need surgery.

    Read Also: Carbohydrate Diet For Ulcerative Colitis

    How To Know If You Have Colitis

    Colitis is a disease characterized by inflammation of the part that covers the large intestine or rectum. It can originate from different causes, whether viral or bacterial infections, problems with the immune system, lack of blood flow, and continuous use of certain drugs, among others. Whatever the cause, medical diagnosis is essential to initiate the most appropriate treatment for each case. So that you can detect it yourself initially, this OneHowTo explains the main symptoms and provide answers to the question of how to know if you have colitis.

    First, it is important to know the root cause as there are different types of colitis. They are:

    • Ulcerative colitis: chronic disease with inflammation and sores or ulcers in the colon.
    • Toxic colitis: a serious complication of ulcerative colitis.
    • Colitis due to the use of certain types of medication: the intake of certain substances such as antibiotics or NSAIDs can cause the lining of the colon to become irritated and inflamed.
    • Haemorrhagic colitis: is caused due to the bacterium Escherichia Coli .
    • Colitis nervous: its manifestation occurs because the patient regularly suffers from stress and anxiety.
    • Granulomatous colitis: results from a disease of the immune system called Crohn’s disease, in which the body mistakenly attacks its own healthy tissue.
    • Fever
    • Eye inflammation.

    How Does Pediatric Ulcerative Colitis Affect My Childs Mental/emotional Health

    Like many conditions, ulcerative colitis can have a negative psychological effect, especially on children. They can experience physical, emotional, social and family problems. Because of the medications and/or general stress from the situation, your child may experience:

    • Mood swings.
    • Worry about appearance and physical stamina.
    • Vulnerability because their body doesnt function normally.
    • Poor concentration.
    • Misunderstandings with friends and family.

    Children need mutual support from all family members. Its helpful for the entire family to learn about the disease and try to be empathetic. Seek out a psychiatrist and therapist to help your child manage such challenges of their ulcerative colitis.

    Also Check: How To Stop Ulcerative Colitis Pain

    Symptoms Of Ulcerative Colitis

    The main symptoms of ulcerative colitis are:

    • recurring diarrhoea, which may contain blood, mucus or pus
    • needing to empty your bowels frequently

    You may also experience fatigue , loss of appetite and weight loss.

    The severity of the symptoms varies, depending on how much of the rectum and colon is inflamed and how severe the inflammation is. For some people, the condition has a significant impact on their everyday lives.

    Oral Vs Rectal Treatments

    The symptoms of ulcerative colitis, before and after ...

    Most physicians prescribe ulcerative colitis patients oral versions of 5-ASAs or corticosteroids, since this is a patient-preferred delivery method of medication. However, even if they have a specially designed release mechanism, they might not reach and treat the area where the disease is most active.

    For example, when you apply sunscreen to your skin, you need to make sure that you cover every exposed part to protect it from the sun. Similarly, when applying these treatments to your rectum and lower colon, you need to make sure that the product covers all of the inflamed areas.

    Oral tablets might not be the optimal way to reach the end of the colon, where stool and the fact that ulcerative colitis patients have diarrhea, might interfere with its effectiveness. Unfortunately, this is also the area in the colon where a flare usually starts. The best way to reach this particular area is by inserting the drug directly into the rectum.

    The medication released from a suppository will travel upward and usually reach about 15 cm inside from the anus. An enema will reach farther, about 60 cm. Those with ulcerative colitis usually insert these formulations before bedtime, and this way the medication is retained as long as possible. Stool does not typically interfere with the drug, since the bowel area is typically relatively empty right before bed.

    Read Also: What To Eat When You Have Gastric Ulcer

    What Does The Name Mean

    Colitis means inflammation of the colon. Inflammation is a localized reaction which causes swelling, redness, pain and heat.

    Ulcerative means causing the development of ulcers. When the lining of the colon is inflamed for a long period of time it becomes damaged and ulcers can develop and these ulcers can bleed and become infected.

    Ulcerative colitis is sometimes abbreviated to UC.

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